Navigating Clinical and Research Data Services
The Duke Data and Analysis Resource Center (DARC) maintains this catalog to help Duke researchers find the right data resources from entities across the School of Medicine, Duke Health, and the University.
Department of Population Health Sciences
Support for qualified Duke researchers to access and explore extensive research-ready, secure health care data including Medicare claims data repositories, IBM® MarketScan®, NC Medicaid, and the Jackson Heart Study.
Duke Cancer Institute (DCI)
DCI Bioinformatics Shared Resource
Bioinformatics support to DCI investigators, including research involving complex genomic data management, data integration, computing and statistical analysis.
DCI Information Systems (DCI-IS)
Data science and biostatistical support and research application maintenance and support for oncology related data queries against Duke EHR data, the Tumor Registry, and the Molecular Tumor Registry (MR-T).
Duke Clinical and Translational Science Institute
Clinical Data Research Network (CDRN)
Support to use clinical EHR data from Duke and more than 35 external health care organizations that also participate in three CDRNs in which Duke partners.
Clinical Research Data Mart
Support to use curated and characterized Duke patient data refreshed quarterly and organized in the PCORnet Common Data Model with additional research relevant sidecars
Support to use the study’s longitudinal clinical information and health outcomes reported from several EHR systems, self-reported health data, data on lifestyles and habits, environmental data and a diverse array of baseline biospecimens.
Duke Clinical Research Institute (DCRI)
DCRI Dataset Catalog
Support to use clinical research datasets, including interventional research, observational research, and other research initiatives from primary results articles published after July 1, 2018.
Data Request Form
Support to use clinical research datasets including the Duke Databank for Cardiovascular Disease and Bristol Myers Squibb sponsored clinical trials.
Data-sharing and analytics platform supported by more than 20 academic, industry and philanthropic partners that offers investigators a simple, secure way to discover, share and analyze data from clinical trials regardless of who sponsored the research or where the research took place.
Duke Health Technology Solutions (DHTS)
Analytics Center of Excellence (ACE)
Self-service tools to access and explore Duke Health clinical, operational, and EHR longitudinal patient data (DEDUCE, Slicer-Dicer) and enterprise EHR APIs. Recruitment for clinical trials leveraging real-time clinical data (DISCERN), Custom data extracts, data marts to integrate various data sources, and API solutions.
Duke Institute for Health Innovation
Support to access and analyze Duke patient data and metadata through customized data queries and tools that continuously synthesize the data.
National COVID Cohort Collaborative (N3C)
The National Institutes of Health provides a secure, centralized enclave to store and study vast amounts of medical record data from people from throughout the U.S. who have been diagnosed with coronavirus disease. N3C accelerates scientists’ ability to conduct powered analyses, answer critical research questions and identify potentially effective treatments. There is no charge to contribute and use the data, which includes health risk factors that indicate better or worse outcomes. N3C is a partnership among the Clinical and Translational Science Awards (CTSA) Program hubs and the National Center for Data to Health (CD2H) with overall stewardship by the National Center for Advancing Translational Sciences (NCATS).
Social Sciences Research Insitute (SSRI)
Free consultative service open to Duke students and faculty working on linking datasets, developing methods, or finding potential collaborators.
Research Data Sets
Support to use data from various longitudinal studies of childhood development, educational attainment, aging demography, voting districts, and energy/labor market utilization; the dbGaP database; and HRS-M (Health & Retirement Survey linked with Medicare claims) and other federally linked datasets.
Triangle Research Data Center
Support to use Census Bureau economic and demographic censuses and surveys along with non-public data from the Bureau of Labor Statistics, National Center for Health Statistics, and the Agency for Healthcare Research and Quality.